Today is going to be a day of heat! Using heating bed duddy step by step... Hopefully hitting the spa later today.
Showing posts with label ankylosing spondilitis. Show all posts
Showing posts with label ankylosing spondilitis. Show all posts
Tuesday, October 4, 2011
Monday, October 3, 2011
The start of finding it out
Okay so the tweet and facebook limitations of how much you can say doesn't work for me. Most days I have a lot more to get out of my head. Just about a year ago I really got ill. Vertigo, nausea, fatigue, extreme pain in my back and even no mobility in my neck. Even my hands were bad. When I finally went into urgent care (December of 2010) I had a faint pulse extremely low blood pressure, to the point of the doctor hooking me up for an EcG. After three hours there and coming up with only vertigo, blood work was clean for any current scary "bugs" going around and thyroid issues and anemia and well you name it it was checked.
I was sent to an Ear Nose Throat doctor to have the sinus cavity and cerebellum checked for fluid. All, that MRI showed was extreme sinus congestion with no major infection. One antibiotic after another mixed with steroids mixed with nasal spray...
I ended up at work, four months later still on meds that were not working other than the steroids, and felt this searing pain in both arms. Went in to another urgent care doctor, he suggested that I see an orthopedic and RA. Following up on that, the xrays came back clean. Then into the RA- she did her physical exam asked if I had ever been told I have Fibro Myalgia? Nope. "Well then I will tell you. You have the most extreme case of FM that I have seen in a long time." Then she asked about the scoliosis and went to take measurements of the spine. Didn't get too far she took one measurement of my lumbar. Had me touch my toes (hmmmmm right touch them?!!!) Then I got the news of spondylopathy.
Now start the blood tests and even more xrays.... Six days later I had the diagnosis. Ankylosing Spondilitis. Even tho I do not carry the HBLN-7 gene. Now to absorb that news. Research time.
I found much information on the net that scared, confused and relieved me. IT IS NOT TERMINAL.
I was sent to an Ear Nose Throat doctor to have the sinus cavity and cerebellum checked for fluid. All, that MRI showed was extreme sinus congestion with no major infection. One antibiotic after another mixed with steroids mixed with nasal spray...
I ended up at work, four months later still on meds that were not working other than the steroids, and felt this searing pain in both arms. Went in to another urgent care doctor, he suggested that I see an orthopedic and RA. Following up on that, the xrays came back clean. Then into the RA- she did her physical exam asked if I had ever been told I have Fibro Myalgia? Nope. "Well then I will tell you. You have the most extreme case of FM that I have seen in a long time." Then she asked about the scoliosis and went to take measurements of the spine. Didn't get too far she took one measurement of my lumbar. Had me touch my toes (hmmmmm right touch them?!!!) Then I got the news of spondylopathy.
Now start the blood tests and even more xrays.... Six days later I had the diagnosis. Ankylosing Spondilitis. Even tho I do not carry the HBLN-7 gene. Now to absorb that news. Research time.
I found much information on the net that scared, confused and relieved me. IT IS NOT TERMINAL.
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